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Fibromyalgia & Lupus

Discussion in 'Medical Marijuana Usage and Applications' started by Shauneh, Apr 14, 2008.

  1. Aloha

    To those of you who don't know what the diseases are, having fibromyalgia is like having a single, enormous bruise around and inside your entire body, while lupus is like a cancer that eats at your immune system. The combination of these illnesses is extremely harsh.

    Someone very close to me is suffering from both of these chronic pain illnesses, and I am trying to get her to try marijuana as a medicine.

    Until about a couple years ago when I first began showing her all the good weed can do, she was against it completely. Now I'm finally beginning to open her eyes to the medicinal applications of weed.

    She has gone through a myriad of pharmaceuticals, and needless to say none of them have done a whole lot of good. I believe weed is the answer, and that it will get rid of the pain. If weed can help multiple sclerosis, it can definetly help with fibromyalgia and lupus. All she is afraid of is "becoming a stupid stoner".

    I was wondering if anyone on Grasscity has or knows somebody who has the diseases fibromyalgia and/or lupus, and is using medical marijuana as a medicine?

    Seriously, if she refuses to check out a medical marijuana clinic (and there are plenty of them in California), I'm just gonna roll up some Maui Wowie and smoke it with her. Maybe that will further change her ignorant perception.

    Mahalo all
     
  2. My grandmother also suffers from FibroMyalgia.

    She recently had to have neurosurgery on her upper spine, in an attempt to relieve some of her pain.
    Its too early to tell.

    I've been trying to get her to try Cannabis as a medicine.

    She too, can't seem to get over the stigma of 'smoking' or even the taboo of using Marijuana.

    She is definatly becoming more open as the days go on, though.
    One day I'm confident She'll try it, and it will work wonders.

    She is intolerable to conventional opiate painkillers. Attemped Vicodin, Percocet... Even a short trial of OxyCodone. Alas, nothing works.

    Fibromyalgia is a hell of an illness. As im sure lupus is aswell.
    Best of luck, my friend.
     
  3. When I heard my grandfathers glaucoma medication wasn't working, I called his doctor and asked what his stance was on using marijuana as a treatment for glaucoma when conventional therapies fail, and he said his next move might have been recommending that (grandfather lives in CA). So now my grandfather uses marijuana everyday medicinally, and he says it's helping much better than any medication he has tried before.
     
  4. Wow, thats a pretty cool list. Amazing how different strands of marijuana can have specific effects on the body depending on the illness, if that thread it viable.

    To be honest, I don't think anyone I know grows Blueberry or Bubble Gum cannabis. I'm going to put my trust in Maui Wowie for my relative with fibromyalgia and lupus though, and I'll get back to you on how it effects her.

    I'm sorry for your Grandmother man. Truly, I am.

    One thing I am using to convince my relative that medical marijuana is a good option is the complex we have that because of her combined illnesses, she probably won't live longer than another 15 years. Maybe that could help with your granmother?

    What I would say to both my relative and your grandmother: just smoke one joint, and if it doesn't help, you can at least say you tried. Your relative and mine are both getting on in years; how can one joint do any harm when it can possibly do all the healing?
     
  5. MM for lupus, is this proven to be an effective treatment?
     
  6. joe Biggs: MM for lupus, is this proven to be an effective treatment?

    This woman I knew, when I was a freshman in High School, she used MMJ and had some form of lupus that caused her pain and made her not able to take painkillers. I think MMJ is praised for helping lupus patients, because they cannot take opiate painkillers and MMJ can help pain. I doubt it actually treats the underlying issue of lupus, just the pain associated with it.
     
  7. I know many patients with FMS and SLE. All of them do well with cannabis.
    You may wish to look into preparing edible cannabis concoctions for her, which would be more . . .perhaps, tolerable.
    You can make cannabutter and put it in a cookie recipe. Note: use less than the full amount in the recipe (example: if the cookie recipe calls for 3/4cup butter, then use 1/4cup in cannabutter and the rest in plain butter), that way it's not too strong for a cannabis naive person to handle. With edibles start low dose and work up. Edibles take longer to start ( up to an hour or 2), but last longer than smoke, for some. So, do not let them chow down on more than one cookie, or they might have a bad experience, or sleep for ages. LOL
    You can prepare a cannabis tincture which is taken via eyedropper and placed under the tongue for sublingual absorption. It works almost as fast as smoking. It's an alcohol extract of cannabis.
    If you're really creative you can prepare cannabis elixir, which is a cannabis syrup made with honey. 1/2-1tsp at a time, and it yummy, too. (gotta make tincture first, then combine with honey in a double-boiler to evaporate out the alcohol)
    www.letfreedomgrow.com
    click on Recipes.
    Good luck! :)
     
  8. i have lupus an it allows me to be a functional member of society
     
  9. Hi I have Fibro and for me these are the strains that help, Chocolope, Jack Herer, UK Cheese (also helps with Migraines), Special Kush, PermaFrost, Master Kush, FlowerBomb. The best for all symptom relief and energy too was a hash - Sharkberry Cream (Great White Shark & Blueberry mix) by Green House Seeds. Strains that didn't work and made worse were Blue Cheese, Holy Grail, Diamond Girl, LA Confidential. Hope this helps :)
     
  10. I've had Fibromyalgia for 27 of my 49 years (since age 22). And I can tell you straight from the top, Fibromyalgia is F#####D ! Only a person with Fibro can really relate.
     
    But just try to imagine this;
     
    Take any part of your body which has nerves (so pretty much all of it except hair and nails.... and BTW, the scalp, and nail beds are also very susceptible) Now, all of these parts are subject to any kind of negative sensations you can imagine > aching, burning, stinging, itching, etc.
    It is like your nerves are constantly sending false pain signals to your brain.
     
    And I mean, some of it is just downright weird shit ! Once in a while lately, I suddenly feel like I cut the shit out of my left thumb. I mean, I'd swear it must be a deep cut, and just dripping blood... but I look at it closely, and not so much as a scratch ? For many years, I'd suddenly get pains in one ankle, or both, that felt like a knife being jammed right through my ankle joint ! Then, a few minutes later, my ankle would be fine. But really, I can hardly think of any single part of my body, that has not ever given me any Fibro problems (pain).
    ~~~~~~~~~~~~~~~~
    My totally honest opinion of MM for Fibro..... Yes, it can be of some help. At least as much as any kind of crazy man-made (prescription BS). I tried a few of those and the side effects eff'ed me up bad ! ....and I was given these, by a Dr'.... who won't prescribe MM ? This sure is a whacked out world in which we live.
     
    However, after having Fibro for 27 years, and my life quality down to nearly zero, 4 years ago, I finally decided to flip the script, and I went from not taking care of myself at all > read: horrible BS diet, and zero exercise, to that of a health and fitness freak.
    This ^ is what has put my Fibro into 95% remission.
     
    Nowadays, I don't need pot to help me with my Fibro "near as much" as my Fibro is now SO much better. What pot probably helps me with more, is sleeping well. I seem to get onto stretches where I don't sleep well for 3-5 days at a time. Pot (if its the right stuff) makes a 100% positive difference with this for me. < Very important, as much as I workout now.
     
    Also, I wouldn't, for one second, say that I don't enjoy the effects of pot for recreational purposes :)
     
    Peace.
     
  11. A couple more strain guides-
     
    Cannabis Strain Explorer     (web page - 2012)      http://www.leafly.com/explore
     
    Medicinal Marijuana Strains       (news – 2010)
    http://www.thefreelibrary.com/Medicinal+Marijuana+Strains-a01074139322
     
    Here's what I have on Fibro and Lupus-
     
    Cannabis Sativa (Marijuana) for Fibromyalgia        (list - undated)
                http://www.fibromyalgia-reviews.com/Drg_Marijuana.cfm
     
    Cannabis for Chronic Pain: Case Series and Implications for Clinicians
    (abst - 2002)          http://www.prohealth.com//library/showArticle.cfm?libid=8711
     
    Clinical Endocannabinoid Deficiency        (full - 2004)  
    http://www.scribd.com/doc/43672268/Clinical-Endocannabinoid-Deficiency-CECD-Russo
     
    Fibromyalgia, IBS, and the Endocannabinoid-CB-Receptor (ECBR) system  
    (abst - 2004)
    http://www.prohealth.com//library/showArticle.cfm?libid=10562
     
    Chronic Pain and Cannabinoids        (full – 2005)
    http://www.drkoprp.com/pdfs/fibromyalgia/CannabinoidsPPM.pdf
     
    Delta-9-THC based monotherapy in fibromyalgia patients on experimentally induced pain, axon reflex flare, and pain relief       (abst - 2006)   http://www.ncbi.nlm.nih.gov/pubmed/16834825
     
    THC Reduces Pain in Fibromyalgia Patients       (news - 2006)   http://www.illinoisnorml.org/content/view/63/35/
     
    Study of analgesic effects of oral THC in Germany ...       (abst - 2007)
    http://www.prohealth.com/me-cfs/blog/boardDetail.cfm?id=1134112
     
    Fibromyalgia: Effective Treatment with Medical Marijuana       (news - 2007)
    http://www.salem-news.com/articles/november292007/leveque_fybromyalgia_112807.php
     
    Synthetic Cannabis for Fibromyalgia Pain?      (news - 2007)
    http://www.healthcentral.com/chronic-pain/c/5949/16104/fm-pain
     
    Are cannabinoids a new treatment option for pain in patients with fibromyalgia?
    (abst - 2008)        http://www.ncbi.nlm.nih.gov/pubmed/18521112
     
    Anandamide and neutrophil function in patients with fibromyalgia.     (abst - 2008)
    http://www.ncbi.nlm.nih.gov/pubmed/18395993
     
    Nabilone for the treatment of pain in fibromyalgia.      (abst - 2008)
    http://www.ncbi.nlm.nih.gov/pubmed/17974490
     
    Expression of the endocannabinoid system in fibroblasts and myofascial tissues.
    (abst – 2008)      http://www.ncbi.nlm.nih.gov/pubmed/19083670
     
    Marijuana-Based Drug Reduces Fibromyalgia Pain, Study Suggests       (news - 2008)
    http://www.sciencedaily.com/releases/2008/02/080217214547.htm
     
    Fibromyalgia and Medical Marijuana         (news - 2008)
    http://www.webmd.com/fibromyalgia/guide/fibromyalgia-and-medical-marijuana
               
    Marijuana Ingredient May Cut Fibromyalgia Pain        (news - 2008)
    http://www.webmd.com/fibromyalgia/news/20080219/pot-drug-may-cut-fibromyalgia-pain
               
    Marijuana Derivative Called Effective in Fibromyalgia        (news - 2008)
    http://www.medpagetoday.com/Rheumatology/Fibromyalgia/8377
     
    Two New Approaches for Fibromyalgia        (news – 2008)
    http://www.health-and-age.org/health-topics/2008/2/27/two-new-approaches-for-fibromyalgia.html
     
    Tetrahydrocannabinol (Delta 9-THC) Treatment in  Chronic Central Neuropathic Pain and Fibromyalgia Patients: Results of a Multicenter Survey        (full - 2009)   http://www.hindawi.com/journals/arp/2009/827290.html
     
    Cannabinoids, endocannabinoids, and related analogs in inflammation.      (full – 2009)
    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2664885/?tool=pubmed
     
    Medical Marijuana and Fibromyalgia        (news – 2009)
    https://www.marijuanadoctors.com/content/ailments/view/29?ailment=fibromyalgia
     
    The Effects of Nabilone on Sleep in Fibromyalgia: Results of a Randomized Controlled Trial.        (full - 2010)               http://www.anesthesia-analgesia.org/content/110/2/604.long
     
    Medical marijuana may help fibromyalgia pain        (news - 2010)
    http://www.cnn.com/2010/HEALTH/02/22/medical.marijuana/
     
    Cannabis Use in Patients with Fibromyalgia: Effect on Symptoms Relief and Health-Related Quality of Life         (full – 2011)   http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3080871/?tool=pubmed
     
    Cannabinoids for Treatment of Chronic Non-Cancer Pain; a Systematic Review of Randomized Trials.       (abst – 2011)      http://www.ncbi.nlm.nih.gov/pubmed/21426373
     
    Inhaled Cannabis Beneficial For Fibromyalgia Patients, Study Says        (news – 2011)
                http://norml.org/index.cfm?Group_ID=8572
     
    One in 8 with fibromyalgia uses cannabis as medicine       (news – 2012) 
    http://www.reuters.com/article/2012/07/12/us-fibromyalgia-cannabis-idUSBRE86B1D620120712
     
    1 in 10 fibromyalgia patients uses marijuana to ease pain    (news – 2012)
    http://medicalxpress.com/news/2012-06-fibromyalgia-patients-marijuana-ease-pain.html
     
    Pot Popular for Pain in Fibromyalgia       (news – 2012)
    http://www.medpagetoday.com/comments.cfm?tbid=33384
     
    Reefer tokin' seniors in South Florida see pain go up in smoke      (news – 2012)
    http://articles.sun-sentinel.com/2012-07-23/news/fl-toking-oldsters-20120723_1_reefer-pain-seniors
     
    Which Medical Marijuana Strains Are The Best For Fibromyalgia?         (news – 2012)
    http://www.theweedblog.com/which-medical-marijuana-strains-are-the-best-for-fibromyalgia/
     
     
     
    Systemic Lupus Erythematosus by Lisa Swiderski      (anecdotal - undated)
    http://rxmarijuana.com/lupus.htm
     
    Lupus by Randi Cox      (anecdotal – undated)
    http://rxmarijuana.com/shared_comments/lupus2.htm
     
    Cannabis May Suppress Immune System       (news - 2003)
    http://lupus.webmd.com/news/20030415/cannabis-may-suppress-immune-system
     
    Systemic Lupus  by Dawn      (anecdotal - 2005)  http://www.erowid.org/experiences/exp.php?ID=49481
     
    Suppression of human macrophage interleukin-6 by a nonpsychoactive cannabinoid acid.     (abst - 2008)         http://www.ncbi.nlm.nih.gov/sites/pubmed
     
    Plaquenil, Rheumatoid Arthritis, Lupus and Marijuana (Cannabis)       (news – 2010)
    http://www.mcsocal.com/blog/plaquenil-rheumatoid-arthritis-lupus-and-marijuana-cannabis
     
     
    If you want to try her on edibles, I recommend checking this out- 
     
     
    BadKat's CannaPharm: Canna Caps, UV Reactive GLOWING Hash Candy, Canna 'Bombs' & more       (forum post - 2011) 
    http://forum.grasscity.com/incredible-edible-herb/742831-badkats-cannapharm-canna-caps-uv-reactive-glowing-hash-candy-canna-bombs-more.html
     
     
    Hope that helps!
     
     
    Granny
     
  12. I have Lupus.
     
    Cannabis, IMO, is not a treatment for Lupus( Plaquenil and Predisone has made the most difference for me), but has been very effective in treating the pain, nausea, and muscle spasms associated. I can't take NSAIDS any longer, or opiate medications, so cannabis became my only choice.
     
  13. I have an auto immune disease and I found cannibis helps on top of perscription meds. Helps with eating, sickness, mania and insomnia
     

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