Cannabinoid Hyperemesis Syndrome Help/stories

Discussion in 'General' started by diddyjob, Aug 23, 2014.

  1. I am in my early twenties and have been smoking daily for about 5 years. I haven't really taken a break of more than a few days in the past 2 or 3 years. About 8 months ago I had my first acute vomiting attack that put me in the hospital, it felt like a pain in my lower right abdomen. All test were run and everything came back negative. I was put in observation for a few hours then sent home on pain killers. These acute attacks happened once a month or so for the past 6 months. During one of the particularly bad attacks I oddly drew a hot bath and hopped in which made things a little better. The attacks always subsided after 6-14 hours or so. The next day I would feel fine and would move on with my life of daily smoking. About 1-2 months ago out of the blue, I began to wake up with nausea that would prevent me from eating a breakfast. After a month of that the nausea progressed to full blown nausea with vomitting every morning right after my morning smoke. Since the symptom onset I have seen 5 doctors and had all blood work/urine work/ct scans etc coming back negative, though I was getting worse. I had taken nexium for a suspected ulcer though that did nothing. I had lost about 20 lbs in a month or two from my inconsistent diet due to waking up nauseous. I finally got an appointment with a good GI doctor who within 3 minutes diagnosed me with Cannabinoid Hyperemesis Syndome and informed me about it. I had read about it before but didn't give it much thought. I was skeptic but I gave it a try and stopped smoking. Over the next 5 days I made a miraculous recovery. My appetite came back with a vengeance and I woke up without nausea for the first time in months. I haven't smoked in about 10 days now and I feel great.
     
    So first things first, the Marijuana was undoubtedly the main causal factor in keeping me sick. No marijuana = no sickness. We can debate the science and the unlikeliness of it all day but the truth of the matter is when I smoked I was sick, now that I have stopped I made a speedy recovery. I have a graduate degree in science and understand how to do research. Pubmed is a great database for learning about CHS. For the trolls & skeptics out there, it is 100% real, I am not interested in debating the legitimacy. This is my first post because I don't spend time browsing pot forums, I'm a professional, the only reason I am on here is to find some first-hand accounts and experiences with the illness. It may not be the marijuana alone that is causing this problem but I know for certain that stopping smoking has fixed this problem and that is the only identifiable step I can take to ensure I feel well. The point of this post is to find other people who's story is similar, so we can discuss auxiliary causes or triggers to maybe learn some more about the condition. If my story sounds familiar to yours please tell it.
     
    So some things to point out-
     
    1. The timeline - I experienced acute/warning attacks monthly before the symptoms were persistent and continuous. It seemed as if there was a build up. For you visual learners this is a good representation. Let the number 0 = wellness and normal life, and let the number 1 = shitty day of nausea and vomitting. As time went from left to right my situation looked like this:    
     
    00000001000000100000100010001001010010101101110111111111111
     
    It was not like this 
     
    00000000000000000000000000000000111111111111111111111111111
     
    This leads me to believe there is a build up, or gradient effect.
     
    2. The acute attacks always seemed to be preceded by a brief period of fasting, such as a day with minimal groceries/food or a day of travel. This is just something I considered a possible contributing factor.  I understand most people report a lot of weight loss from inconsistent diet, vomitting, etc. I am wondering if the weight loss or particularly fat loss makes the condition occur or worsen. It is hard to tell if the weight loss is a contributing factor to the syndrome, or if it is a result of the syndrome. Anyone's thought are appreciated, maybe someone else has noticed this as well. 
     
    3. I smoked about a half gram of good stuff a day, Not a tremendous amount by any means but enough to spread out throughout the day. I usually always smoked in the morning, and took a hit a occasionally throughout the day leading up to a few hits at night. It was mostly out of a 1 hitter, so maybe the fact that I was just a little high all the time from waking up to going to bed, played a role, as opposed to waiting until night to smoke a lot. I wonder if the majority of people who get this have the same kind of all day smoking habits as opposed to nightly binges, of the same cumulative amount. 
     
     
    I plan on taking another month or so off before trying to smoke again to see how rapidly these symptoms come back. It is reported that its more than likely that even moderate or light usage will bring the condition back faster than the original time frame of daily smoking for years. Most people report that just after a week or two the symptoms come back hard. 
     
    I am looking for people who:
    1. were diagnosed with or realized they had the condition
    2. stopped smoking and then their symptoms subsided
     
    Additionally I would like to know who attempted to smoke after a detox period. How long did you take a break for? How long did it take for symptoms to subside? How often/how much did you begin to smoke after the detox period? It seems odd that a condition seemingly brought on by a built up effect would come back after just a few times of using following a complete detox. 
     
    I understand people will attempt to discredit me, the syndrome, and others who have it. I really have no interest in that. I have an interest in moving forward and learning more. My grammar in this is not the best so I'm sure that will be attacked too but who I'm too lazy to take my time on this, this shit isn't graded so why the hell does it matter. 
     
    So.. If you have a similar story post the timeline, usage facts, things you noticed, detox and reuse success/failure, etc. You know what I'm getting at. Let's try and informally get some learning going about this rare condition. If you have any questions about my story just ask and I can clarify, its tough to write a story covering 6 months of complicated symptoms/health issues in just a few paragraphs. Thanks!
     

     
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  2. I read untill you said you were a professional, and couldn't browse the forums for the answer.

    You answered yourself, no smoking=no sickness. If intaking cannabis is so bad, just stop, no ones forcing you to get high.
     
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  3. #3 Storm Crow, Aug 24, 2014
    Last edited by a moderator: Aug 24, 2014
    I've never had cannabinoid hyperemesis, but I do collect medical studies, hon. Here are the latest on cannabinoid hyperemesis.
     
    Cannabinoid hyperemesis.   (# 1)        (full – 2010)  http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2886568/?tool=pubmed
     
    Cannabinoid Hyperemesis and Compulsive Bathing: A Case Series and Paradoxical Pathophysiological Explanation      (full – 2010)       http://www.jabfm.org/content/23/6/790.long
     
    Cannabinoid-Induced Hyperemesis: A Conundrum-From Clinical Recognition to Basic Science Mechanisms               (link to PDF - 2010)     
    http://www.mdpi.com/1424-8247/3/7/2163/
     
    The cannabis hyperemesis syndrome characterized by persistent nausea and vomiting, abdominal pain, and compulsive bathing associated with chronic marijuana use: a report of eight cases in the United States.          (abst – 2010)  http://www.ncbi.nlm.nih.gov/pubmed/20130993
     
    A man in his 30s with recurrent vomiting and abdominal pain relieved by hot showers
    (full – 2011)         http://tidsskriftet.no/article/2167144/en_GB/
     
    Cannabinoid hyperemesis syndrome as the underlying cause of intractable nausea and vomiting.         (abst - 2011)          http://www.ncbi.nlm.nih.gov/pubmed/21464265
     
    Cannabis Hyperemesis Syndrome.  (# 1)          (abst – 2011) http://www.ncbi.nlm.nih.gov/pubmed/21692016
     
    Cannabis Hyperemesis Syndrome   (# 2)          (abst – 2011) http://www.ncbi.nlm.nih.gov/pubmed/22150623
     
    Image of the month. Skin discoloration from compulsive bathing in a patient with hyperemesis syndrome.           (abst  – 2011)             
    http://www.cghjournal.org/article/S1542-3565%2810%2900843-8/abstract
     
    Cannabinoid hyperemesis syndrome inducing acute prerenal failure and electrolyte disturbance.        (abst – 2011)         http://www.ncbi.nlm.nih.gov/pubmed/21877303
     
    Cannabinoid hyperemesis syndrome: literature review and proposed diagnosis and treatment algorithm.        (abst – 2011)         http://www.ncbi.nlm.nih.gov/pubmed/21886087
     
    Cannabinoid hyperemesis syndrome: an underreported entity causing nausea and vomiting of pregnancy.       (abst – 2011)        http://www.ncbi.nlm.nih.gov/pubmed/21170540
     
    Pediatric cannabinoid hyperemesis: two cases.      (abst – 2011) 
    http://www.ncbi.nlm.nih.gov/pubmed/21131803
     
    Hyperemesis and a High Water Bill.         (abst – 2011)  http://www.ncbi.nlm.nih.gov/pubmed/22069047
     
    Cannabinoid hyperemesis syndrome: case report of a paradoxical reaction with heavy marijuana use.        (full – 2012)          http://www.hindawi.com/journals/crim/2012/757696/
     
    Association of Marijuana Use and Cyclic Vomiting Syndrome      (link to PDF – 2012)
    http://www.mdpi.com/1424-8247/5/7/719
     
    Cannabinoid hyperemesis.  (# 2)          (abst – 2012)  http://www.ncbi.nlm.nih.gov/pubmed/22186263
     
    Cyclic vomiting syndrome and functional vomiting in adults: association with cannabinoid use in males.       (abst – 2012)       http://www.ncbi.nlm.nih.gov/pubmed/21951771
     
    Cannabinoid hyperemesis: a case series of 98 patients.       (abst – 2012)
    http://www.ncbi.nlm.nih.gov/pubmed/22305024
     
    A hot bath to calm what ails you - the Cannabis Hyperemesis Syndrome.
    (abst – 2012)         http://www.ncbi.nlm.nih.gov/pubmed/22423343
     
    Cannabinoid Hyperemesis Syndrome: A Case Series and Review of Previous Reports.
    (abst – 2012)        http://www.ncbi.nlm.nih.gov/pubmed/22480624
     
    Cannabis hyperemesis syndrome    (#3)      (abst – 2012)
    http://www.ncbi.nlm.nih.gov/pubmed/21692016
     
    Spicing Up the Differential for Cyclic Vomiting: A Case of Synthetic-Cannabinoid Induced Hyperemesis Syndrome (CH)             (abst – 2012) 
    http://d2j7fjepcxuj0a.cloudfront.net/wp-content/uploads/2012/10/ACG2012_Poster83.pdf
     
    Marijuana use associated with cyclic vomiting syndrome in young males    
    (news – 2012)         http://www.eurekalert.org/pub_releases/2012-01/w-mua010912.php
     
    Marijuana use may cause severe cyclic nausea, vomiting, a little-known, but costly effect
    (news – 2012)    http://www.sciencedaily.com/releases/2012/10/121022081353.htm
     
    Cannabinoid Hyperemesis Syndrome   (#4)       (full – 2013) http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3847982/
     
    Compulsive showering and marijuana use - the cannabis hyperemisis syndrome.
    (full – 2013)      http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3757911/
     
    Cannabinoid hyperemesis syndrome with extreme hydrophilia      (link to PDF – 2013) http://www.dovepress.com/cannabinoid-hyperemesis-syndrome-with-extreme-hydrophilia-a14072
     
    A Case of Cannabinoid Hyperemesis Syndrome Caused by Synthetic Cannabinoids.
    (abst – 2013)            http://www.ncbi.nlm.nih.gov/pubmed/23890687
     
    Cannabinoid Hyper-emesis Syndrome: An Enigma.           (abst – 2013)
    http://www.ncbi.nlm.nih.gov/pubmed/24379506
     
    Marijuana, Real or Fake, Can Lead to Unusual Gastro Problem       (news – 2013)
    http://www.medicinenet.com/script/main/art.asp?articlekey=164227
     
    A Gut Gone to Pot: A Case of Cannabinoid Hyperemesis Syndrome due to K2, a Synthetic Cannabinoid.           (full – 2014)
    http://www.hindawi.com/journals/criem/2014/167098/
     
    Mid-ventricular Variant Takotsubo Cardiomyopathy Associated with Cannabinoid Hyperemesis Syndrome: A Case Report.             (full – 2014) http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3998230/
     
    Cannabinoid hyperemesis should be recognised as an effect of chronic cannabis abuse
    (full – 2014)        http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4129569/
     
    Cannabinoid Hyperemesis Syndrome: An Emerging Drug-Induced Disease.
    (abst – 2014)            http://www.ncbi.nlm.nih.gov/pubmed/24413371
     
    No opiates against cannabis hyperemesis syndrome         (abst – 2014)
    http://www.ncbi.nlm.nih.gov/pubmed/24519114
     
    Cannabinoid Hyperemesis Syndrome: A Case Report and Review of Pathophysiology.
    (abst – 2014)             http://www.ncbi.nlm.nih.gov/pubmed/24667219
     
    An Internet survey of marijuana and hot shower use in adults with cyclic vomiting syndrome (CVS).          (abst – 2014)            http://www.ncbi.nlm.nih.gov/pubmed/24792504
     
    It's likely that your answer is in there!
     
    Granny
     
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  4. Again this post is for people who have CHS, and have experience in dealing with it. If someone who has it can never smoke again not even once down the road without bring back symptoms, it hints at permanent changes in your body due to the marijuana use. This is what I am interested in. I have read every source and first hand account on the internet and in medical journals. It is very misunderstood especially, the mechanisms behind it. Experience = understanding. So plz again. Anyone have this? Has anyone tried detoxing for months or years, then smoking again? Thanks!
     
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  5. I'm most interested in if this is a build up of toxicity due to chronic abuse or if it's a permanent change in your brain/receptors due to years of daily smoking. 
     
  6. Maybe you could be the first and start your own journal, since you've read every source and firsthand account.
     
  7. There aren't many sources and first hand accounts to read unfortunately.. Most of the people who have this do not follow up with medical professionals after they stop smoking and symptoms subside. So I am looking for those people and I would like to know what they're health is like following cessation, if they have tried to start after stopping etc.. Again I can't start my own journal because I have a job and go to school. Something seemingly foreign to you. Again stop trolling, start learning.
     
  8. Your right, I has no ideas bout no schoolin. Hell flunked outta second grade cause I couldn't spell cat...

    So I suppose I can ask what happens when someone does say they've quit for 15 years, and got violently sick after the first puff? Gonna discredit them cause it's what you don't want to hear?

    You ALREADY know you get sick after smoking, how are we supposed to know if time will change YOU?
     
  9. No if someone said that they've quit for 15 years, and got violently sick after the first puff it would be a credible first hand account and I would assume this condition most likely causes long-term changes in the brain or body. It would be exactly what I want to hear, not the opposite. I'm looking for information on this rare condition. But instead, as expected, I get trolled by people like you haha. 
     
    You ALREADY know you get sick after smoking, how are we supposed to know if time will change YOU?
     
    I don't get sick after smoking. I smoked for 5 years without problem. I just happen to be getting sick now. I'm looking for similar people to hear their stories maybe find some auxiliary causes. The point of this post is to learn not get trolled by you. I'm assuming you don't have this condition or any experience with it, and thus know very little about how it makes you feel. So you offer very little contribution to this post. Thanks!
     
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  10. Medicine is very informal. It is based on observations, similarities, differences, consistencies among symptoms etc.. I'm not hear to debate, just gather information from people who have CHS. I am not sure what you plan to accomplish by trolling?
     
  11. Well if I was trolling, I'd want to try and get you to rage-quit.

    But you seem to have me all figured out.

    So another question would be how you have all this time to get on here and try to get people to tell you what you want to hear, but can't start your own journal?

    Or at least browse grannies links?

    Would it be the "professional" in you that can't take the time to read? Or is it just easier for people to give you the answers?
     
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  12. I have had this issue if I wake up to early after smoking. My solution? Dont smoke so late at night if i cant sleep atleast 8 or more hours.

    Sent from my cows
     
  13. Every time somebody posts about this you legalize pot extremists go incredibly nuts. It DOES happen, I have experinced it myself. Now, I have found over the years if I smoke even just a joint, right before going to bed if I have to be up in 4 hours i will litteraly puke my guts out. Have had it happen time and time again. But, if i can get about 7+ hours of sleep, im fine.

    Sent from my cows
     
  14. #14 diddyjob, Aug 24, 2014
    Last edited by a moderator: Aug 24, 2014
    thank you cow time this is the kind of stuff I'm looking for. keep it coming plz. there may be a time frame or window for symptom onset at night.
     
  15. been smoking for about 15 years, and yes, it's real...
     
    in my family before this term ever existed we called it "sweatosis," because the puking fit is usually accompanied (at least by members of my family) with an extreme hotflash... 
     
    usually goes, extreme hotflash, kind of a horrible pins and needles feeling all over, then your mouth starts watering, i've noticed it's a weird kind of saliva you have then too, it tastes like baking soda WTF.. then you puke, usually a really gross half digested acidic mess of junk food you grubbed out on before you passed out stoned the night before.
     
    it's a running joke around here about "losing a bout of sweatosis" in the morning when we're all gathering and doing our routine and smoking that bowl in the morning that cures it (ha viscous never ending cycle)
     
    but no... i love pot, if this is the most horrible effect (worst i've experienced anyway) then that's pretty damn good.. the benefits definitely outweigh the negs..
     
    like cow time said as well.. getting really high and then not getting enough sleep (and having a full gut when you go to bed) exacerbates the situation. 
     
  16. I can't help but think this is somewhat different Texas. I can not smoke because of it. My calorie intake was cut to about 500 calories a day and I was losing weight quickly. I could not even keep down water. Even one little hit perpetuates the symptoms for about 3 days. It's interesting there seems to be different levels of it. I am the biggest marijuana advocate there is, but smoking is just not an option for me because of the effects CHS. However, no matter how severe it is (terrible for me & tolerable for you) poor diet is always brought up. I wonder if there is anyone out there that had a very, very good diet, and is active who experiences CHS to a high degree? My diet was definitely worse leading up to these attacks than it had been the previous 3-4 years of smoking. A few weeks ago when it got to the point of waking up with vomiting every day, my diet did not matter I was on a liquid diet at the doctor's request and still incredibly sick. Within 3 days of not smoking I woke up feeling ok for the first time in months.
     
  17. #17 diddyjob, Aug 24, 2014
    Last edited by a moderator: Aug 24, 2014
    In my instance it's not a side effect to the act of smoking marijuana, it seems that chronic use has a long-term effect on my hypothalamus (digestion and temperature regulator) or my digestive system itself. I'm very interested to see what happens when taking 1 or 2 hits after a complete detox in about 3 months.
     
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