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Cystic Fibrosis and Marijuana?

  • by scottw
  • Jan 15 2010 01:31 PM
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Posted 15 January 2010 - 01:31 PM

Hello, i am fairly new to GC. I have Cystic Fibrosis which seriously affects my lungs and digestive system i have about 72% lung funtion left. I read that using a vaporizer doesn't affect the lungs at all but at the same time can help my lungs. is this true? and is it 100% guaranteed not to do any bad? i dont want to loose lung function because i done this if you know what i mean. thanks!
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Posted 15 January 2010 - 01:35 PM

When you vape you get none of the harmful effects from combusting plant matter.
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Posted 15 January 2010 - 05:08 PM

Hello, i am fairly new to GC. I have Cystic Fibrosis which seriously affects my lungs and digestive system i have about 72% lung funtion left. I read that using a vaporizer doesn't affect the lungs at all but at the same time can help my lungs. is this true? and is it 100% guaranteed not to do any bad? i dont want to loose lung function because i done this if you know what i mean. thanks!


I believe it would be safe to say that it would have no effects on your lungs. Vaporizing is not smoking, it is the inhalation of vapors..

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Posted 15 January 2010 - 05:18 PM

ive read a study that the lungs of a marijuana smoker is the same as a NON smoker

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Posted 15 January 2010 - 05:24 PM

please do not smoke or vape anything if you realy have C.F. at only 72% it could be realy realy bad. It will not help your lungs. Please p.m. if you would like some help with some edibles or something.
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Posted 15 January 2010 - 05:26 PM

Yes, vaporising dramatically reduces the negative effects of smoking the plant matter. You could also try eating it. THC is also an expectorant and so you may find it helps rid some of the mucus from your lungs, however I know very little about cannabis' effect on Cystic Fybrosis.
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Posted 15 January 2010 - 05:48 PM

one problem with cystic fybrosis is it makes your lungs very suseptable to irratation as well as infections/pnumonia's and then you don't recover the same, the damage can be permanent. please don't vape try some edibles.

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Posted 15 January 2010 - 07:18 PM

Vaping is MUCH easier on the lungs than smoking! But, with your situation, I wouldn't chance it on a regular basis.
In my "Granny Storm Crow's MMJ Reference List", I have recipes for tinctures which work faster than edibles, but a bit slower than vaping/smoking. Tinctures are easy to make and can be made with alcohol or glycerin (get it at a heath food store). You just put a few drops in your mouth and swirl it around. The THC will go right through your cheek skin and into your blood.

I also have a HUGE collection of recipes for edibles from the IC Forum, and a "Stoner's Cookbook" linked in my list if you prefer edibles.

Cannabis DOES open up the bronchial tubes and makes it easier for mucus to be expelled. There is an article about COPD and the effects of cannabis (and tobacco) on lung function-
Smoking Pot, Cigarettes Ups COPD Risk
Smoking Pot, Cigarettes Ups COPD Risk
I know it's not what you have, but the results may interest you and give you a better perspective on the effects of cannabis on the lungs. I have not found any studies on CF and cannabis.


Granny :wave:
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Posted 16 January 2010 - 05:38 AM

Cannabinoids and Cystic Fibrosis - Journal of Cannabis Therapeutics

Cannabis stimulates appetite and food intake. This property has been exploited to benefit AIDS and cancer patients suffering from wasting disease, by administering the whole plant or its major active ingredient ?9-tetrahydrocannabinol (THC).

Endogenous cannabinoids (“endocannabinoids”) are found in maternal milk. We have recently shown that endocannabinoids are critical for milk ingestion and survival of newborns because blocking CB1 receptors resulted in death from malnutrition.

Lack of appetite resulting in malnutrition is a contributing factor to mortality in many Cystic Fibrosis (CF) patients. It is proposed here for the first time, to administer THC to CF patients. It is hoped that the cannabinoid will alleviate malnutrition and thus help prevent wasting in CF patients.

Recent findings suggest that a lipid imbalance (high arachidonic acid/low DHA) is a primary factor in the etiology of CF and that defective CFTR (CF transmembrane conductor regulator) that characterizes the CF condition is responsible for the dysregulation. Endocannabinoids are all fatty acid derivatives. Therefore, it is further proposed here that the CFTR gene product also modulates endocannabinoid synthesis, through regulation of fatty acid biosynthesis. According to this hypothesis, CF patients display decreased levels of endocannabinoids and by elevating these levels, symptoms may improve. Indeed, a number of physiological mechanisms of cannabinoids and endocannabinoids coincide with the pathology of CF. Thus it is suggested that potential benefits from THC treatment, in addition to appetite stimulation, will include antiemetic, bronchodilating, anti-inflammatory, anti-diarrheal and hypo-algesic effects.


Fride E. The endocannabinoid-CB receptor system: Importance for development and in pediatric disease. Neuro Endocrinol Lett 2004; 25(1-2): 24-30
http://www.ncbi.nlm....pubmed/15159678

Edited by tharedhead, 16 January 2010 - 05:51 AM.

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Posted 16 January 2010 - 07:02 AM

Now, generally speaking, when there is not any current information on cannabis and a paticular disease, a good thing to do is to go back and look at how cannabis was used to treat that disease prior to cannabis being made illegal.

The problem with this method and Cystic Fibrosis is that Cystic Fibrosis was not even identified as a seperate disease until 1930. Before 1930 it was just lumped in with all the other childhood wasting disorders. And it was usually fatal before the age of 3.

(off topic) So far, a good deal of searching in 1800's source material has revealed that Cannabis Indica is an excellent remedy for nosebleeds, and headache
http://www.jstor.org/pss/20210259

(beats head on wall)

Edited by tharedhead, 16 January 2010 - 07:22 AM.


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Posted 22 October 2012 - 03:02 PM

Hey not to sure if you found your answer but your story caught my eye.
I'm 19 I have cystic fibrosis and live a good life.I have used marijuana
Sense I was 13.I have never been admitted in the hospital I just started
Using a vaporizer bout a year ago and strongly recommend it.Im a strong
Believer that marijuana has helped me with my sickness.Hope this helps!
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Posted 24 October 2012 - 04:13 AM

I'm just sure I was talking to someone else on here about CF a while ago.

Ah here it is not much but some one to talk with about it if he is still at Grass City.

http://forum.grassci...c-fibrosis.html

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Posted 24 October 2012 - 04:19 AM

Hello, i am fairly new to GC. I have Cystic Fibrosis which seriously affects my lungs and digestive system i have about 72% lung funtion left. I read that using a vaporizer doesn't affect the lungs at all but at the same time can help my lungs. is this true? and is it 100% guaranteed not to do any bad? i dont want to loose lung function because i done this if you know what i mean. thanks!


there are no guarantees in life except that we will both pass some day. In the mean time here is my asthma medicine recipe. I don't like to Vape because it causes me rebound asthma. If you think MJ will help your CF it is a way to get it in that at least works for asthma.

http://forum.grassci...h-medicine.html

I also ran this search for you tonight
https://www.google.c...sis Cannabinoid

I read the first hit in the list and it looks like you & I are closer to being in the same boat than I thought at first. We should become fishing buddies. You want to get a sharp fast education in the Omega-3 Fatty acids DHA and EPA. They metabolize into the endocannabinoids DHEA and EPEA. You also want to learn about another endocannabinoid called PEA (Palmitoylethanolamide) It comes from Coconut oil.

Edited by Asthmatic, 24 October 2012 - 04:31 AM.


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Posted 24 October 2012 - 02:42 PM

vape or edibles bro, you need to start getting faded

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Posted 25 October 2012 - 05:22 AM

please do not smoke or vape anything if you realy have C.F. at only 72% it could be realy realy bad. It will not help your lungs. Please p.m. if you would like some help with some edibles or something.



I so agree with what comrade has said PM. I have a vaporizer and they are very difficult to get the hang of. I had a pretty decent one but it had its flaws I guess, like everything else. Every time I used my vaporizer it made me cough, sometimes quite violently.

My caregiver said that it shouldn't do that. Well, there you go. You just have to spend a lot of time figuring out the right temperature. Mine was digital and although the manual suggests 320-350, I set it at 309 and the weed never caught on fire again! LOL
Okay, so after that adjustment I didn't cough, AS MUCH.
Perhaps I gave up to early but I didn't like messin' with it trying to get it to work just right. And I wondered, "Do I need to mess around with it every time I vape a new weed cause some burn faster than others depending on their stickiness, even if you grind it up like the manual says to do?" I decided its not worth it and have been thinking of putting my vaporizer up for sale. Its been used 15 times. Its in perfect condition and looks just like it did when I bought it; except for the whip. The whip is a little discolored.

If you are looking for advice/ ideas/ experiences/ suggestions then I would say stick with the medibles. Research the dispensaries in your area and pick one that is not too pricy but is safe and respectable.

Peace,
Cheryl : )

Edited by Cheryleeee, 25 October 2012 - 05:27 AM.


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Posted 25 October 2012 - 05:40 AM

Now, generally speaking, when there is not any current information on cannabis and a paticular disease, a good thing to do is to go back and look at how cannabis was used to treat that disease prior to cannabis being made illegal.

The problem with this method and Cystic Fibrosis is that Cystic Fibrosis was not even identified as a seperate disease until 1930. Before 1930 it was just lumped in with all the other childhood wasting disorders. And it was usually fatal before the age of 3.

(off topic) So far, a good deal of searching in 1800's source material has revealed that Cannabis Indica is an excellent remedy for nosebleeds, and headache
JSTOR: An Error Occurred Setting Your User Cookie

(beats head on wall)


:wave:
LOL @ "beats head on wall," time to light up. Regan put a halt to most all of the testing just beginning. He demanded that the tests being done concentrate on those that only identified the side effects and not the medical benefits. We have so far to go with our learning and understanding of marijuana and its potential for healing. I'm sure there are many European countries that are far ahead of us.

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Posted 29 October 2012 - 12:22 AM

I am 22 and i also have cf. Personally i believe that marijuana helps me with my cystic fibrosis. I know alot of people say that i shouldn't but i feel alot better when i use my vaporizer regularly. I feel like my lungs are clearer and everything. People say its hurting me bc it makes me cough but i am also on a nebulizer called sodium chloride solution USP 7% thats main reason is to make me cough up some more of the mucus than usual. And in general i feel better when i use it. I feel healthier in general and in my opinion that is all that matters. Plus i dont notice as many crackles in my breathing and my cf doctor said my lungs sound clearer and my lung function hasn't dropped any so i dont see where its hurting me in any way.

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Posted 20 May 2013 - 05:19 PM

I started smoking at 14 and my exacerbations changed from every 4 months one every two years. Also about the same time pulmozyme and inhaled tobramycin came into regular treatment. Always associated the change of health with the inhaled pharmaceuticals and puberty. I quit for roughly 100 days and lost 15 points on my fev1. Being in the danger zone my dr issued antibiotics giving me a week to improve before a hospital stay. I continued to not smoke. A week later I had marginally improved but the dr was ok with no hospital stay. I then started to smoke again but for health. I'm a light smoker as an eighth will last me about three weeks. I use a routinely cleaned water bong fitted with a batty/pinch-hitter. Next clinic visit my fev1 was higher than they had seen with me since I was 22. Lately I have been trying hard to eat a quality food no fast food good quality foods high calorie high fat high fiber diet and it has also helped to avoid infection through the allergy season thus far. I also suggest avoiding raw milk and juicing fresh vegetables and fruits. The juicing is new that I can get my chronically low vitamin d levels up. A little investigation and you will find that vitamin d has a significant role in immune function. Dehydration should also a must to be avoided.

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Posted 20 May 2013 - 07:52 PM

Anyone who thinks cannabis cant help CF needs to wise up, the lungs love cannabinoids and as some said, its an expectorant.

 

You need a vape and/or and oil rig, smoking probably wont help you.

Edited by Jimmy Carter, 20 May 2013 - 07:52 PM.


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Posted 31 July 2013 - 10:59 AM

I agree with a few CFers on here... I have CF and started smoking when I was 19, generally most days for about 2 years. I went from spending about 8 weeks in hospital a year as a 17 and 18 year old, from memory (im 34 now), to only going in once a year from then on... My lung function also improved hugely going from below avarage to up to 127% FVC at its best (FEV1 was sually around 90% then)... Not anymore, but I used to manage 6.7ltrs of air during the time I was smoking out of a bong. Admittedly, in the name of science, I was also snowboarding 5 months of the year too, so exercise helping the lungs also... I havent smoked in years now, lungs are pretty good still and I use some alternative stuff (google 'master tonic 101') as my all-naturale antibiotics...

 




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