Crohns disease experiences (also loss of appetite/nausea)

Hello. Fellow Crohnny here.
 
I was diagnosed with Crohn's in the summer of '13, a few weeks before the start of my senior year. I decided to quit sports due to complications I was having with my illness. I struggled making it to class at times, but on top of that I was a good student and managed to graduate on time with my peers. The really strange thing though, is that my older brother began complaining about intestinal discomfort right around the same time and he was diagnosed with Crohns not less than two months before me. I've only discovered I had Crohn's for a year now and it feels like I have been thru hell and fire already.. 
 
From what I hear though its the first months after diagnosis that are the toughest. I am learning a lot on managing my symptoms and I learn new stuff everyday. I've devoted myself to make lifestyle choices, I've cut out tobacco, alcohol and caffeine entirely from my life. and I have found that eliminating those three socially accepted drugs has made a tremendous improvement on my symptoms. 
 
I'd agree, mornings are typically rough for me. I feel like whatever I ate late at night comes back to haunt me the next morning for whatever reason. I've been thru all sorts of medicine in this past year. I had a bad drug interaction with one of my medicines and I ended up in the hospital with Pancreatitis. Now I am pill-free and give myself a humira injection every two weeks.
 
Now a days I try not to eat the standard 3 meals a day (breakfast, lucnh, dinner) but instetad I eat small frequent meals thruout the day and I have found that to help as well. I try to get something light for breakfast, morning snack, light lunch, afternoon snack, dinner and then a night snack If I feel up for it. 
 
I try not to smoke, not even mj. I mostly vape now to eliminate what ever toxins and carcinogens are passed into the body through smoking. I have found that the best medicine for Crohns really is MJ. It helps alleviate the nasuea and discomfort I might have. and it helps regulate my appetite and body weight. I have lost about 20 lbs this past year and I am already a pretty small dude the way it is. 
 
I had two colonoscopies last year and I think my GI wants to take another look within the few months here. I love colonoscopies they are so fun... not. 
 
Anyways,
 
I'm glad you made this thread. It's a good way to share experiences with other Crohnnies and pass along meaningful information. 

 

My diagnosis kind of slapped me in the face if you will. 
 
I mean growing up as a relatively healthy child, you know about people who are suffering from illness. and you know about cancer and other diseases. But you don't really understand until you walk in the shoes. I was always healthy growing up and then I suddenly became very tired and constipated, and then after a series of trying laxatives and other OTCs I shifted the other way, quite drastically I spent a lot of time in the bathroom and I struggled for a while. I knew something wasn't right, I knew it wasn't "normal".
 
I guess one thing that I can gain out of this is awareness. and the awareness to know my own body better than any 2nd opinion. I am thankful for getting the diagnosis so early in my life, I'm only 19 so I have so much time to adjust and plan accordingly. I also have the benefit of getting checked out regularly, just in case something worse were to happen. I just tend to live day to day managing my symptoms. Some days are good days some days are bad days but the goal with Crohn's is to have as many "good" days as possible and to live a normal productive lifestyle.

 

First, you were lied to by the medical profession
 
It's not a disease, it's an effect of a large intestine that has run afoul due to bad eating habits over time usually 15+ years
 
The cure is to begin a series of juice fasts combined with cleanses that will slowly break down the plaque that has built up in your large intestine (similar to artery plaque).
 
A negative side effect to IBS/Chrons is your liver is exhausted. It handled the load until it couldn't handle it anymore. Think of your liver as you do the oil filter in a vehicle. Same job
 
Now we know you can't change your liver, BUT, you can clean it out!
 
The process will also clean out your large intesstine, but you will likelly need to do 1 cleanse every 10 days- 2 weeks for ~ 10 cleanses minimum.  I have done ~ 15 cleanses. It's simple, and inexpensive, and gets much easier once you get past 3rd cleanse. Search Dr Hulda Clark Liver Cleanse aso www.curezone.com
 
IF you do this faithfully, within 4 cleanses you should notice a HUGE improvement in your health, energy and well being, but don't stop there

 

First, Do you even have Crohns or any form of IBD?
 
The cause of IBD is unknown and not well understood yet. So I'm not going to sit here and let you tell me that I developed this disease soley from poor diet. I've been healthy my whole life and was even a 4 sport athelete in High School. No one knows what causes Crohns, not even you.  Poor diet over a long period of time is obviously a possibility but there are also genetic, and environmental factors that can not be ruled out. 
 
Are you speaking from experience or just talking out of your ass? Crohn's sure as hell is a disease. a disease that produces inflammation in the digestive tract. The inflammation can occur any where in the digestive tract, from your mouth to your ass. The Colon and small intestine are most commonly affected. 
 
Do you have any basis for your information? any links? anything? 

 

Again, you were lied to.
 
The cause IS known, but big pharma only makes money selling meds.
 
I get that you don't get that, but that doesn't change the facts.
 
It would be kind of hard for me to provide all those details without knowledge, don't you think?
 
Search for Jordan Rubin's book Patient Heal Thyself
 
The product he promotes is only so-so, but the info is sound
 
Hope you can get past the lie, and get on with healing yourself

 

I don't doubt that there are natural ways to significantly improve your health but that is no cure. I acknowledge the fact that people have taken natural methods to help their alleviate their illness.
 
I was not lied to. The cause is unknown. You have 0 basis for your information. I have a disease that is producing inflamattion in my gut. There is no  knowon cure for Crohns...yet. 
 
If you don't have Crohns or IBD you really don't belong here. 
 
Take your shit somewhere else.

 

Let no good deed go unpunished
 
You're welcome

 

Hello! I just joined a program here in Colorado to start receiving my RSO/PT oil at a significantly reduced price. I as well have crohns among a few other things. I am currently expirementing with various additives such as agave necter, coconut oil, and soy lecithin as bioavailibility is everything. Too many and i mean too many times has my medicine not been absorbed. Taking a gram of oil a day sublingualy is also no an option as the oil burns your tounge and mouth in large quantiies.

Sent from my SAMSUNG-SGH-I317 using Grasscity Forum mobile app

 

 
Hi, bless your intentions. To honor your commitment, I did some research, and the guy who wrote the book, Jordan S. Rubin.
He has his degrees from places not recognized by scientists, and his theory is based on the Bible. Already there alarm bells should be ringing furiously
 

 
^ that's from a published medicine journal, which means it is peer reviewed. (Source: Helen Davidson (2008). "Maker's Diet". In Jacqueline L. Longe. The Gale Encyclopedia of Diets: A Guide to Health and Nutrition. Thomson Gale. pp. 643–46)
 
Peer review seperates the legit scientists from the bullshit artists. J. Rubin just wrote some shit and published it, he didn't even submit it for peer review, which bullshit artists tend to avoid. Because then they get exposed
 
If a series of juice cleanses was what it took to cure Crohns, there would be a different order of business, and would be presented in medical journals. Doctors would know, specialists would know. That isn't to say it wouldn't work on a specific case basis - after all, there is a man who has been cured of AIDS; human genetics are so complex that what gives one person a disease could give the next better health.
Eating healthy is never a bad idea either, but the Bible Diet has no scientific, peer-reviewed and vetted evidence behind it. 
 
So J. Rubin is a bit of a snakeoil salesman, and should NOT be promoted. Not by you or by anyone

 

Bible thumpers bother me too, but I can assure you, the science is sound.
 
I can aslo assure you that funding and grants for scientific research are provided by those with an agenda to control the 411
 
with a little searching you can find lots of whistle blowers, who usually get discredited by those with the resources to protect their investments

 

 
I'm sorry but your assurances hold no weight. I'm not saying that to be harsh against you, but the whole basis of medicine revolves around being able to prove that your method for healing works. You don't prove this to wide-eyed 'civilians' who don't know anything other than what you've told them. You prove it to peer scholars who know their fucking shit. You prove it with experiments and data that can be replicated with the same results. Then, and only then, does a method hold weight.
 
I do agree that there is corruption in the medical industry in America. However, I would argue that you are naive if you think EVERYTHING done in medical science is dictated by evil corporations out to make a profit. 
 
For this specific case, there is no peer reviewed approval of "Dr." Rubins work. He's doing like you, assuring that it's alright, assuring that it works, using himself as an example. I argue that unproven methods like this do more harm than good when it comes to healing those who do the suffering. 

 

 
I have a friend with Crohn's and he feels best by pureeing his meals to soup like consistency.  Also, small meals throughout the day seems to help a little too.  Every time he time eats enough to get really full, he suffers.
 
Cannabis oil didn't do much for him, though he still tries.

 

As few as 3 years ago there were no commericals on TV promoting probiotics, but people like Jordan opened pardoras box.
 
To control the opposition (natural emedies that work) commercial probiotics being sold. All are derived from commercially raised dairy cows, whose milk is loaded with antibiotics and has been pasteruized and homogenized (you might want to look those up). The resultant products (including commercial yogurts) are sorely deficient on the very enzymes and organisms that will restore the GI balance, which is critical to resolving IBS/Chrones, etc

 

The cause of both is the same
 
The information is out there
 
Now, you're welcome
 
and goodbye