"A six-year-old girl who helped inspire one of Utah's newest laws died Saturday morning. Charlee Nelson sometimes suffered from hundreds of seizures in a single day. The girl's parents were among those who reached out to law makers for the legalization of cannabis oil in Utah for medical use. The resulting bill was officially called Charlee's Bill. The little girl leaves behind a big legacy. “We just felt honored. We just felt Completely honored that her legacy would be continued on after she was gone. That she could help other children to benefit from this, that she never had a chance to try.†said Katrina Nelson, Charlee's mother. Charlee's childhood started out like any other until she had her first seizure at 3 and a half, according to her mother. She was eventually diagnosed with Batten disease. “It was hard to see your child go through that and not be able to explain why or help them in any way, because the meds weren't helping, nothing was helping.†Katrina said. “Her disease was one that slowly would just take one function after another to the point where she was blind, she wasn't able to eat anymore, she lost the ability to swallow. She couldn't walk or talk,†said Jeff Nelson, Charlee's father. On Tuesday, during her last trip away from home, Charlee's parents said she felt something. “They all stood up and gave her a round of applause, and she kind of, her body, she perked up, she was like this is for me and it was and that was the last day that she was awake and happy,†said Katrina about Charlee as the Utah Senate gave a standing ovation to the Nelson family. After nine revisions, the Utah Senate unanimously passed Charlee's Law. Katrina said she felt the bill would have passed without Charlee because of the advocates and parents who fought so hard for it. “But the impact and feeling that was on the Senate floor and House of Representative floor on Thursday was, it was her mission,†Katrina said. “Only a child could do that for them. To put a face to what it really meant. That's what really touched everyone's heart,†Jeff said. Gov. Herbert has indicated he will sign off on the new law. It is expected to go into effect in July. Also, on June 29, there will be a motorcycle ride to raise money for Batten disease and to honor Charlee's memory. Learn more about the event by visiting charleesangels.org." http://fox13now.com/2014/03/15/girl-who-helped-inspired-new-utah-law-dies/
Charlee Nelson, 6, of West Jordan, died Saturday, March 15, 2014 of Batten disease just days after HB105, or "Charlee's Law," was passed in her name. The law would allow the use of non-intoxicating hemp oil extract to treat those with refractory seizures related to epilepsy. Charleesangels.org WEST JORDAN - Charlee Nelson was a young girl who loved to dance, sing Twinkle, Twinkle Little Star and read books. "She was kind of shy, but at the same time, she loved to make people smile," her father, Jeff, said. "She loved that kind of interaction, making people happy." Charlee was just 3 1/2 when she had her first seizure. Saturday, she passed away at the age of 6. Her death came just days after a Utah bill, HB105, was named Charlee's Law in her honor. The bill allows the use of non-intoxicating hemp oil extract from marijuana plants to treat refractory seizures related to epilepsy. "If we would have had an option like the oil, that would have been a miracle to have," Jeff Nelson said. (snipped) Rest in peace, baby girl! Become an activist. Granny http://www.deseretnews.com/article/865598790/Parents-remember-child-6-who-died-days-after-law-was-passed-in-her-name.html
She is going to come (reincarnate)back as a high CBD cannabis plant and heal hundreds of little children with seizures and make them happy to live! Rest in peace
This is a perfect example of why we as cannabis users need to make the argument to the prohibs "What about the Children"...?? This is a life changing drug that has the potential to relieve a child's symptoms of a debilitating condition and we are sending people to jail for trying to treat themselves. It's absurd...these types of medicines need to be legal everywhere if we have to do it on the backs of high CBD strains so be it. So the next time some asshole spouts off that we need marijuana illegal to help the children ask him how this little girl's parents feel.
I still can't believe our society doesn't recognize the potential of medicinal marijuana. This could have easily been prevented
most of our society does not understand the concept of natural healing or plant based medicine or preventive medicine( the biggest one). people want to go full out science fiction with medicine while completely blinding themselves to natural herbs that they step on and smell when they walk around. there are herbs screaming right now I can help you human!! but we do not know how to listen to what they say.
When I was 14 the docs prescribed me dexadrine, ritalin and aderol at one time or another for ADD. So it's ok to give a kid speed because they can't concentrate on things that bore them. But it's not acceptable to give kids who have life threatening diseases high cbd low thc meds with no psychoactive effects. That makes a lot of sense!