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Epilepsy

  • by Annicus
  • Mar 06 2014 07:40 PM
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Posted 06 March 2014 - 07:40 PM

So last year in December I had two grand mal seizures and was in the hospital in ICU for two days. I got diagnosed with epilepsy. So I was wondering if any other blades have epilepsy? Perhaps we can relate to each other, send advice, kind words of encouragement or whatever.

Anywho it's been a struggle for me: not being able to be alone, drink alcohol, have sex, drink caffeine, exercise hard, take baths, drive etc....

At least I got my medical card....


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Posted 06 March 2014 - 07:58 PM

Yup hard to believe it was 8years ago i was diagnosed..... they told me that day i had more back to back partial seizures on the eeg than the neurologist had ever seen or heard of in 20yrs as neurologist.....
All their meds made me worse....more seizures more often more intense..... in 09 i had my right temporal lobe removed....
Now i still have seizures..... just not as often or as intense...
I got a thread round here about getting diagnosed and eventually having brain surgery.... will post a link when not posting from my phone......
I got a bunch of epilepsy related shit posted round the board

Yeah i kept working for a long time (long as i could) as a roofer....and then building scaffolding at the shipyard 200ft in the air all the time....

Dude i got tons of shit i could tell you.... research i could share....

Can tell you this....if you haven't figured it already....
The doctor's don't really know much.....
Most often all they can do is tell you "what" their tests say.... and rarely tell you why....

Unless you have some obvious brain damage.... they really don't know why most of us even have seizures...
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Posted 06 March 2014 - 11:44 PM

http://forum.grassci...it-sceince.html

 

http://forum.grassci...ogy-anyone.html

 

http://forum.grassci...lling-rain.html


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Posted 07 March 2014 - 10:34 AM

Thanks dude. I read all through everything...

Right now, I guess I'm just being selfish because I can't see any good in this right now. I'm so angry, fuck you to who hurt me all those years back, fuck you oregon state police, fuck you brookings Oregon, fuck you homophobes, I fucking hate you for what you did to me.


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Posted 07 March 2014 - 10:40 AM

Sorry you're going through this, Anni. I watched my brother go through seizures when we were kids. Its the scariest fucking thing i've ever witnessed. I hope you can find peace somehow. 

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Posted 08 March 2014 - 01:31 AM

http://forum.grassci...7-brain-dd.html

 

 

 

 

epilepsy forum..... you may have to register to read these...... but they are worth it and who knows what you may find there.....

http://www.patientsl...y/topics/102739

http://www.patientsl...y/topics/113254

http://www.patientsl...e=2&prompt=cpts

Edited by dirtydingusus, 08 March 2014 - 01:37 AM.


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Posted 09 March 2014 - 02:33 AM

Sorry to hear about that man. I really hope you get through it. I have no idea what its like to have epilepsy or even have a seizure, but its some scary shit for sure. Good luck with everything man.
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Posted 09 March 2014 - 02:44 AM

Thanks dude. I read all through everything...

Right now, I guess I'm just being selfish because I can't see any good in this right now. I'm so angry, fuck you to who hurt me all those years back, fuck you oregon state police, fuck you brookings Oregon, fuck you homophobes, I fucking hate you for what you did to me.


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believe me i hear you.... i see you only just got diagnosed.."last December" as in couple months ago or one before?
I know at first for me was the worst... i had simple and complex partial seizures all my life without knowing what it was till blacked out and crashed truck.... never had generalized/grand mal/tonic clonic seizures before taking their meds to stop that shit....
Hope you find how to live with it... and find some peace.... i know it took me some time...and there are still days....
Postictal today and feeling like shit.....




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