View Single Post
  #31 (permalink)  
Old 07-26-2008, 05:20 PM
1blood1life is offline  
1blood1life humbly walks among the Blades
1blood1life
Registered User
1blood1life's Avatar
Join Date: May 2008
Location: Minnesota
Posts: 218
Another Crohnie here...I was diagnosed two and a half years ago at 16. It's summertime, which means flares for me too. At the moment, I've been without more than 1000 calories total in a day, the majority of that is liquid, for 8 days. For some reason, everything else is staying quiet again after moving my Humira up to once a week, but this nausea and vomiting is taking its toll on me. I've been smoking a few times a day to minimize the nausea, unfortunately, it hasn't helped me keep anything down.

As for Remicade, I was on it for almost a year, and it helped me tremendously after figuring out that I just needed it every 6 weeks instead of 8, which is the norm. But, last summer, I ended up having a lupus-like reaction to an infusion because I started flaring again, and my GI doubled my dose. I've been on Humira since.
  Reply With Quote